14. Start Ginkgo Biloba Now

The world of Down syndrome is changing.  In my opinion, babies born today will grow up to resemble little of the “syndrome” identified by Langdon Down—if their parents take advantage of the most recent research findings.  This is a big “if” because it is up to the parent to seek out the research findings and not wait for the established support organizations to catch splash7rzup.

I’m going to try in just a few paragraphs to explain a very complex concept in recent research.  You see, the brain doesn’t just have a mess of neurons firing at random.  Instead, there is a perfectly designed system to tell neurons when to fire, and also to tell them when to quiet down.  You can picture it as a busy downtown maze of streets, and with a traffic lights over the various lanes, telling the cars when to go.  If your light is green you go.  When it is red, you stop.

In 2004, research found that the neurons in the brain of the genetically modified DS mouse fire just fine.  So what’s the problem, then? There is too much of the neurotransmitter (more…)

Brain Growth on Changing Minds Protocol?

Today I received an email from a mom (I’ll call her H.) who has had her daughter on the Changing Minds protocol for the past year.  She reports some very encouraging data about her daughter’s increase in head circumference.  She has given me permission to share this data with you.  First H quoted Merck to explain the normal rates of head circumference growth:

Head circumference reflects brain size and is routinely measured up to 2 yr. At birth, the brain is 25% of adult size, and head circumference averages 35 cm. Head circumference increases an average 1 cm/mo during the 1st year; growth is more rapid in the first 8 mo, and by 12 mo, the brain has completed ½ its postnatal growth and is 75% of adult size. Head circumference increases 3.5 cm over the next 2 yr; by age 3 yr, the brain is 80% of adult size, 90% by age 7 yr.

This means that head circumference shows a rapid increase, and then levels off.  A picture would show a rapidly rising line, and then leveling off by about age three. Here is a chart of average head circumferences in Down syndrome. H. went on to give her own daughter’s data.

With that in consideration, here’s what happened with my daughter:

  • at birth, her head size measured around 36cm.
  • Age 1: 45cm
  • Age 2.5 – 3.5: 47cm
  • Age 4.5: 49 cm
  • Age 5.5 – 10.5: 50cm (puberty started at age 9)
  • Age 11.5: 54 cm

head-circ-ds

I’ve plotted H.’s data (violet) on the DS growth chart.  Click on the thumbnail for the full picture.  You can clearly see the leveling of the average growth, as well as the leveling of H.’s daughter’s growth.  The child increased only 1 cm in the six years from age 4.5 to 10.5 which clearly shows that her days of rapid head growth are over. Here’s more data on average head circumference going into adolescence.   Scroll to Table 5.2.  which shows the greatest growth is in the first three years of age .  From age 6 to 12 the average child takes three years for only one cm of growth.   So what is the big deal?  This:

Her head grew in the last year almost as much as it did in the prior 10 years.

In one year this child’s head grew 4 cm.– at a time in life when it should have taken three years to grow 1 cm.

Hmmm…..why?  As I said puberty had started 2.5 years ago, her height and weight shot up, which is indicative of that.  So it stands to reason her head should have grown also, but it didn’t.

The head didn’t grow even though the rest of the body was growing.  Then suddenly the head began rapid growth.

So what changed? The only thing different….my daughter started in Oct. 2007 the Changing Minds Foundation protocol.  Could her brain have grown?!  New brain neurons?

The CMF protocol is here.  The key components are gingko biloba which is a GABA antagonist, and prozac for neurogenesis.

The Battle of the Nasty Supplements

Today a mother wrote the following to the ES email list.

[My son] was making great gains on the ginkgo.  However he won’t take it any more.  He can taste in anything I try and is now refusing to eat some of his favourite foods even when they have no ginkgo in them… :( ((He really was doing well.  It is now almost 2 weeks since the last dose and I can see him sinking away from me again.  It is breaking my heart.  I was getting you to my new, interactive, boy :( ((I have tried all the brilliant suggestions from this list: in yoghurt, in applesauce, trying to get him to swallow tablets…. you name it.I don’t know what to do or where to turn. … Sorry to be asking the same questions over and over, but I do want my little boy back.  [snipped, link added]

One parent suggested crushing the pill, adding a bit of water, and squirting it into the back of his mouth.  That may be a good short term solution.  Another parent suggested dividing this into little steps with lots of positive reinforcement when he does the practice steps.

Here are some other ideas for going forward.  First, your son needs to trust you.  Please don’t put nasty hidden things in his favorite foods.  This has come up from parents again and again; because far too often it backfires.  If I were you, I would leave all his food alone, and determine never to put vitamins, gingko, medicine in it again.  If something like applesauce is used to mix supplements in, then do it in a way that he learns that this is medicine coming and not a normal bowl of applesauce.  Maybe you always use the same blue saucer to mix it in.  Or you always give it away from the table.  Or you always give it before the actual meal starts.  But however you do it, your child needs to know whether or not the spoonful coming at him will be the nasty stuff or not.  Mommy needs to be predictable and trustworthy on this; then he can trust you on his regular food.

Second, before you try to administer something to him, decide whether or not this is optional.  It must be you (the mom) and not the child who decides whether or not he takes certain foods/supplements/medicines. If it is optional, then fine.  In our house it is optional whether or not the kids eat cauliflower.  We offer it to them, and if they decide against it, it was their decision to make.

However if some food, or supplement or medicine is important and not optional, then don’t let the child win.  You are the mom.  Based on your love for your child, and your wisdom, you have decided that he must swallow this spoonful of yuk.  If your tone of voice is pleading, or whining, or worried, or frantic, then a smart child will know that this is a confrontation that he can win.  You must use your deep stern voice,  the voice that means business.  Make the obedience short and quick, only one swallow if you can manage it.  You must not  waver on your insistence on this spoonful (or syringeful) of stuff

If you already have a history of the child winning these confrontations, then you have some work to do to regain your authority.  So, make the next time different.  Use a different location.  Use a different serving utensil.  Use a different medium to mix the stuff in.  Or, bring dad into the picture.  And only choose as big a battle as you are sure you can win.

I don’t usually go into psychology, but sometimes it it helpful, so let me digress here a bit and mention some Skinnerian psychology.  If you want to untrain a habit in your child, you need to understand the dangers of intermittent reinforcement. The Internet is full of info on intermittent reinforcement, but here is one link:

The interesting thing that Skinner discovered about intermittent reinforcement and maybe one of Skinner’s most important discoveries was that behavior that is reinforced intermittently is much more difficult to extinguish than behavior that is reinforced continuously. “This is why many of our student’s undesirable behaviors are so difficult to stop. We might be able to resist a child’s nagging most of the time, but if we yield every once in a while, the child will persist with it.” (Crain, 187) [emphasis added]

If you only sometimes reinforce your son’s refusal to take his supplements by letting him succeed, then it will be even harder to get him to stop his behavior of refusing.  You must succeed every time, because every time you don’t will make it even harder the next time.  If you decide to train him to swallow what is on your spoon, then you are making your job much more difficult if you once or twice relent and let him skip the supplements this time.  Psychologists predict that with intermittent reinforcement, the negative behavior will get worse and more intense, and not get better.

Now, let’s look at long term supplement taking.  It is just worth the effort to teach our kids to swallow pills.

Here are some suggested steps to teach a child to swallow pills.

  1. Get the Oralflo Pill Swallowing Cup Watch that picture sequence on their home page.  Doesn’t that make it look easy?
  2. Begin to teach him to drink from this cup without any pills in it.  Just put in his favorite juice.
  3. While he learns to drink from the cup, introduce some pill-sized candy to him, not to take as a pill, but just to become comfortable with.    Let him have these occasionally so that he knows that they taste good.
  4. Now, try a piece of the candy in the oralflo cup. If he swallows it down, great.  If he is able to trap it in his mouth, then there is no harm done.  Just keep practicing until he can swallow the candy with a swig of his juice.
  5. Only after he is able to reliably swallow a small candy should you risk a nasty pill.  He should have repeated successes at swallowing candy before he risks the trauma of some nasty pill dissolving in his mouth.

The Oralflo cup is optional.  I taught all my kids to swallow pills without it.  But, it sure looks like it makes like easier.

In the short term, change your tactics and make sure that you only reinforce behavior from your son that you want to keep.  Divide it into smaller steps.  Practice behavior that he can succeed at and that you can reinforce.  I think it is worth the time here to do this right.  The short term benefit of occasional ginkgo is not worth the long term ability of your son to thwart your good intentions for his health.

In the long term, teach that boy to swallow pills.

Changing Minds Foundation

The new hot topic of discussion on the email list is the Changing Minds Foundation protocol.  The reason for the intense interest is a video released by the CMF of changes in the kids on this protocol.  I bought the full video from CMF and I am impressed.  I’ve been around Down Syndrome for 16 years.  I’ve had my ear to the ground about any and all interventions that help in Down syndrome.  We have had Mary on targeted nutritional supplements for most of those 16 years.  The nutrition makes a difference in developmental progress, and in health, and yes, even in cognitive skills, of this I’m certain.  But, I have never seen anything like the cognitive gains that I see in this video. So, let’s look at some trailers:

Above, Nicole comes back from Alzheimers, Jacob becomes social, Martha keeps up with grade level, and Neal makes tremendous gains in just a short time.  Here is more on Nicole:

Dr. Teresa Cody has pioneered this new treatment.  I’ve been hearing about Teresa Cody for about 10 years.  She was one of those highly involved moms with the background to tackle the technical biochemical stuff.  She was one who was doing an intensive neurodevelopmental program with her son.  She knew more about nutritional intervention that I ever will.   And yet you can see in these videos how little Neal had learned in 7 years of intensive input.  It looks like Teresa Cody found an intervention that turned his brain on.  You hear more from Dr. Cody here:

The full protocol includes gingko for making of memory, and Prozac for neurogenesis.  Changing Minds has relevant research listed at their website.

Changing Minds video

If you love someone with Down syndrome, buy this video.  Do the research.  Read the abstracts.  Whether or not you decide to follow this protocol, it is certainly worth serious consideration.  I think you owe it to the person you love to become informed about this.

If you would like to join the discussion at the einstein-syndrome email list, that info is here.

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