Comments on: Martha’s Story

By: denise

denise — Thu, 09 Sep 2010 20:18:39 +0000

Your story touches me because it is so similar to mine. I also had a little girl that died at birth, we never found out why. Three months ago I had, Toby, my beautiful little man. We live in Ireland where they have a really good support network for DS children and he was instantly loved by all my facebook friends!!! He brings out feelings in me I didnt know existed and every day seems much calmer and happier than it ever did before. I am both proud and excited to be chosen as a ‘special’ mum and any challenge he faces he will be facing with me by his side.

By: yasmin

yasmin — Thu, 28 Jan 2010 16:11:32 +0000

hi ihave alittle angle boy hes 3 rani is our gift from god
like all children some days are great others not bad
but we have to go forward with alot of love and support
iam trying to enjoy every day with a ds boy
ireally love him no matter how he is

By: Victoria Rowe

Victoria Rowe — Fri, 20 Nov 2009 21:19:30 +0000

I saw on Oprah several month ago a story of a baby boy that had a trisomy of one of the other chromosomes and lived 99 days. As parents of a child with Down syndrome we are fortunate in that we get a change to see our children live their lives. Our children will one day walk, run, play,ect. Yes, there is the chance they will develope leukemia or alheimers but time is on our side that treatments for those can be found. I met a lady that here child died in utero and realize we are truely the lucky ones…and I didn’t even know to pray for my child not to have on of those chromosomal abnormalities where I didn’t know they existed. Yet even those children have a purpose: they show us the value of even a life in utero or the one of only 99 days.

By: Karla

Karla — Sat, 16 May 2009 22:03:22 +0000

We have a 9 month old daughter, Sky who has ds and I wouldn’t change one chromosone. We have had to walk miles of anxiety to get to today (heart defect – 2 1/2 months in intensive care) and I wouldn’t trade one minute of it! God has blessed us. We as ds parents were chosen to take care of his most precious people and it has been an honor to know our Sky! I cant wait for tomorrow!

By: regina

regina — Wed, 05 Nov 2008 11:48:52 +0000

we have three children and our third is called lina,she’s four and has ds.god blessed us whith our angel and she shows us every day what is really important in life!!all the children i’ve just seen on the photos are so beautiful!!she cannot speak yet and i would appreciate to know at what age your angel started to say the first words?thank-you so much!

By: Miriam

Miriam — Mon, 14 Jul 2008 16:51:25 +0000

Linda, I’m not aware of any place on the net to find that. I would certainly not recommend plastic surgery unless there was some compelling medical reason. If it is appearance that you are concerned about, I have two recommendations. First, focus on health. The appearance of the face really reflects the health of the child. By using targeted nutritional supplementation, avoiding allergens, and providing a robust, healthy diet, children with DS radiate health. Secondly, I recommend a program of oral-motor exercise to develop and strengthen the muscles of the face and mouth. Well-toned muscles are a big part of what we perceive as “beauty”.

By: Linda

Linda — Mon, 14 Jul 2008 15:45:25 +0000

Where can I find before and after pictures of DS children who have had plastic surgery? Is it worth it? My first thought it that there cannot possibly be enough “improvement” to rationalize putting a child through elective surgery. But I’m on a learning curve and am willing to investigate. Thanks for your help.

By: Lena

Lena — Fri, 27 Jun 2008 02:07:24 +0000

We have a little boy (Jacob) with Downs who is 2 1/2. He is the youngest of 5 children. He is the light of our lives. Everyday is a new experience that I would not trade for anything. He is such an encouragement to us all. It is so sad to think that the doctor we originally seen had no hope for this little man. We were told he would never do anything and yet he has far exceeded all that we could ever think or imagine. What a true blessing to our whole family.

By: Travis Christenson

Travis Christenson — Fri, 02 May 2008 05:51:05 +0000

We as well have a daughter (Aftyn) with Downs who is four years old. She is the first of three children thus far. I can say with no reservations that she has brought so much joy to our family. My wife and I have learned a great deal more about life through Aftyn than we could have ever imagined. Aftyn brings out the good in every person that she comes in contact with. Having a daughter with Downs wasn’t a road block as we first thought, but rather a new life experience that is more valuable than I could have ever imagined.

Travis Christenson

By: Sarah B.

Sarah B. — Mon, 17 Mar 2008 00:57:53 +0000

I have a little 2 yr old daughter with DS and I tell you what, she is the most amazing creature I have ever met.

Your daughter is one of a million+ amazing individuals with DS.