Health and Medical Issues in Down Syndrome
As we work to keep our children with Down Syndrome healthy, it is wonderfully helpful to build on the research and experience of parents who have gone before us. The health of our children is a major topic on the Einstein-Syndrome list. Listed below are articles compiled from selected posts from the list. This does not constitute “medical advice,” but only the experience of other parents dealing with Down Syndrome.
As you read, remember that every child is different. What works for one child may not work for another. Many of the ideas in the links that follow are out of the medical mainstream. Your doctor may not endorse them. We strongly advise that you use ideas in the articles below as contributing data for your own research, consult with appropriate medical professionals and make your own decisions. If, after doing your research, you decide to follow a practice that is out of the medical mainstream, carefully monitor your child’s progress by appropriate medical testing and oversight.
There has been an attempt to sort articles by category, but this is difficult since our health cannot be neatly chopped up into corresponding body parts. There is quite a bit of overlap among the various categories.
Pages in this section are also linked in the left sidebar. However, most blog posts are not linked on the home page, yet also contain a good deal of medical information pertaining to Down Syndrome. So please use the search box a the top of this page to search the entire site.
Kay Ness, a neurodevelopmentalist with a clientèle which includes both children with autism and Down syndrome, decribes the necessary steps toward recovery from autism.
Finding a doctor; working with your doctor; medical testing; doctor and hospital stories relating to Down Syndrome.
Breastfeeding, formula, and tube feeding in Down Syndrome. Includes what to do when your child with Down Syndrome is not gaining, with heart defects and without heart defects.