Comments on: Einstein Syndrome http://einstein-syndrome.com Down Syndrome with a Positive Attitude Thu, 29 Jul 2010 20:48:04 +0000 hourly 1 http://wordpress.com/ By: Romy http://einstein-syndrome.com/einstein-syndrome/#comment-2041 Romy Sat, 24 Jul 2010 03:19:01 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-2041 My beautiful baby brother will turn 30 next Saturday! I remember my parents bringing him home from the hospital worried, stressed and without the joy I'd been expecting a new baby to bring. But his unlimited ability to love and laugh brightened up my parents fears. Everyone is so proud of our handsome, polite and friendly young man. He reads, works, is a fabulous ballroom dancer, swimmer and always wanting to help others. A few years ago he surprised us all by getting himself a girlfriend, asking out a young lady whose parents my parents had met at a support group for families with Down Syndrome children. He phoned her and asked her to a movie and restaurant without making much of a fuss about it at all. a few weeks later they were holding hands and proclaiming they would be together forever! It's so nice to see him have a companion and look towards building his own future. His girlfriend is a very capable young lady whose parents fought hard to have her taught in the mainstream school system where she learnt to read and write and she did so well she even has her drivers licence and is a very capable and careful driver. My parents regret they did not push my brothers teachers more but a few years ago they got him a tutor and within months he had learnt letters and was on his way to reading fluently. People with DS are very special. They are full of love and they are wise and smart. Don't underestimate them. Sure, some things are hard for them, but there is so, so much they can do if they are loved. My beautiful baby brother will turn 30 next Saturday! I remember my parents bringing him home from the hospital worried, stressed and without the joy I’d been expecting a new baby to bring. But his unlimited ability to love and laugh brightened up my parents fears. Everyone is so proud of our handsome, polite and friendly young man. He reads, works, is a fabulous ballroom dancer, swimmer and always wanting to help others. A few years ago he surprised us all by getting himself a girlfriend, asking out a young lady whose parents my parents had met at a support group for families with Down Syndrome children. He phoned her and asked her to a movie and restaurant without making much of a fuss about it at all. a few weeks later they were holding hands and proclaiming they would be together forever! It’s so nice to see him have a companion and look towards building his own future. His girlfriend is a very capable young lady whose parents fought hard to have her taught in the mainstream school system where she learnt to read and write and she did so well she even has her drivers licence and is a very capable and careful driver. My parents regret they did not push my brothers teachers more but a few years ago they got him a tutor and within months he had learnt letters and was on his way to reading fluently.
People with DS are very special. They are full of love and they are wise and smart. Don’t underestimate them. Sure, some things are hard for them, but there is so, so much they can do if they are loved.

]]> By: 2. Beware of Creeping Low Expectations « Einstein Syndrome: Down Syndrome with a Positive Attitude http://einstein-syndrome.com/einstein-syndrome/#comment-1519 2. Beware of Creeping Low Expectations « Einstein Syndrome: Down Syndrome with a Positive Attitude Thu, 04 Mar 2010 00:08:40 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-1519 [...] Einstein Syndrome [...] [...] Einstein Syndrome [...]

]]> By: MAgdalena Vázquez http://einstein-syndrome.com/einstein-syndrome/#comment-1422 MAgdalena Vázquez Thu, 11 Feb 2010 21:15:57 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-1422 Miriam, Thank you for this article, it made my day when I read it. I beleive a positive attitude makes a great difference in bringing up a child with Down Syndrome. I have a 10 month baby his name is Ismael, I didn´t want a prenatal test because I don´t beleive in abortion and even though he was a surprise for me it was better this way. I´m learning on how to bring him up and how to take care of him. Your page has been a great resource for me. I live in Mexico in the city of Queretaro, Ismael goes to school (early intervention)since he was 40 days old and he´s getting physical teraphy, I don´t see a great difference between him and his siblings, I have a 15 year old son and a 13 year old daughter, maybe Ismael is a little slower, but I have this feeling that he understands perfectly what we say and how we feel about him ;a strange but beatiful feeling. I truly beleive he has a very special spirit. Every day I´m learning and every day I'm proud of him and our family. Well thanks for making this page available for us, where we can share with other families with children with DS, I´m very far away but I feel close to all of you! [I'm so glad this article was a good resource for you. As you work with Ismael, and as you help him to grow and learn, please keep in mind what I wrote in this post <a href="http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/" rel="nofollow">Don't Wait for Their Own Time</a>. The two articles go hand in hand. -Miriam ] Miriam,

Thank you for this article, it made my day when I read it. I beleive a positive attitude makes a great difference in bringing up a child with Down Syndrome. I have a 10 month baby his name is Ismael, I didn´t want a prenatal test because I don´t beleive in abortion and even though he was a surprise for me it was better this way. I´m learning on how to bring him up and how to take care of him. Your page has been a great resource for me. I live in Mexico in the city of Queretaro, Ismael goes to school (early intervention)since he was 40 days old and he´s getting physical teraphy, I don´t see a great difference between him and his siblings, I have a 15 year old son and a 13 year old daughter, maybe Ismael is a little slower, but I have this feeling that he understands perfectly what we say and how we feel about him ;a strange but beatiful feeling. I truly beleive he has a very special spirit. Every day I´m learning and every day I’m proud of him and our family. Well thanks for making this page available for us, where we can share with other families with children with DS, I´m very far away but I feel close to all of you!

[I'm so glad this article was a good resource for you. As you work with Ismael, and as you help him to grow and learn, please keep in mind what I wrote in this post Don't Wait for Their Own Time. The two articles go hand in hand. -Miriam ]

]]> By: Carrie http://einstein-syndrome.com/einstein-syndrome/#comment-1325 Carrie Wed, 27 Jan 2010 20:39:14 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-1325 I have a 7 year old daughter with downs syndrome. She is my sweetie pie, I love her unconditionally. We have had struggles with her school, they don't have the same viewpoint I have. I believe she needs to be challenged, even a "normal kid" won't advance if they are not challenged to. They are STILL teaching her colors, shapes, and counting, and she has been able to do that for YEARS! I have always been active in working with her at home, I never say she can't do that, or she's never going to do that, I am the one that says STOP TEACHING HER SIGN LANGUAGE she is not deaf, she can speak, but she needs help pronouncing her words...things like that. I feel bad because despite my best efforts she is behind, and I feel she could be doing so much more than she is now. I just don't know EVERYTHING there is to know about HOW to help her develop more. I am always proud of her, even when she is not able to do something despite her best efforts, I always praise her and hug her and tell her how happy I am. She get frustrated A LOT and I always try to reassure her that it is o.k. that she can't always do things she wants to do, like draw a girl, or write her name. well, I just saw this website and immediately fell in love, and wanted to share! I have a 7 year old daughter with downs syndrome. She is my sweetie pie, I love her unconditionally. We have had struggles with her school, they don’t have the same viewpoint I have. I believe she needs to be challenged, even a “normal kid” won’t advance if they are not challenged to. They are STILL teaching her colors, shapes, and counting, and she has been able to do that for YEARS! I have always been active in working with her at home, I never say she can’t do that, or she’s never going to do that, I am the one that says STOP TEACHING HER SIGN LANGUAGE she is not deaf, she can speak, but she needs help pronouncing her words…things like that. I feel bad because despite my best efforts she is behind, and I feel she could be doing so much more than she is now. I just don’t know EVERYTHING there is to know about HOW to help her develop more. I am always proud of her, even when she is not able to do something despite her best efforts, I always praise her and hug her and tell her how happy I am. She get frustrated A LOT and I always try to reassure her that it is o.k. that she can’t always do things she wants to do, like draw a girl, or write her name. well, I just saw this website and immediately fell in love, and wanted to share!

]]> By: Momma Monday: Let’s think about the word special « The Tao of Tulips http://einstein-syndrome.com/einstein-syndrome/#comment-1200 Momma Monday: Let’s think about the word special « The Tao of Tulips Mon, 23 Nov 2009 05:54:23 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-1200 [...] a more articulate version of my point in relation specifically to Down syndrome- pop over and visit Miriam and read what she has to [...] [...] a more articulate version of my point in relation specifically to Down syndrome- pop over and visit Miriam and read what she has to [...]

]]> By: Lou http://einstein-syndrome.com/einstein-syndrome/#comment-864 Lou Sun, 07 Jun 2009 13:25:22 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-864 I have an 8month old son who has ds and this article sums up how i hope i am going to continue bringing him up, exactly the same as his 2 sisters. He interacts brilliantly with them already down to vocalising his annoyance if they get bananas before him! I have an 8month old son who has ds and this article sums up how i hope i am going to continue bringing him up, exactly the same as his 2 sisters. He interacts brilliantly with them already down to vocalising his annoyance if they get bananas before him!

]]> By: 8. Don’t Wait for “Their Own Time.” « Einstein Syndrome: Down Syndrome with a Positive Attitude http://einstein-syndrome.com/einstein-syndrome/#comment-827 8. Don’t Wait for “Their Own Time.” « Einstein Syndrome: Down Syndrome with a Positive Attitude Tue, 26 May 2009 01:39:44 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-827 ... Now, I’m all in favor of high expectations. But those high expectations need to come with a healthy dose of reality. Early intervention, as it is currently practiced, doesn’t cut it. The reality is that a child with Down syndrome will not learn everything that any other child will learn, not unless there is <strong>specific, targeted neurodevelopmental input</strong>, and <strong>specific targeted metabolic input</strong>... … Now, I’m all in favor of high expectations. But those high expectations need to come with a healthy dose of reality. Early intervention, as it is currently practiced, doesn’t cut it. The reality is that a child with Down syndrome will not learn everything that any other child will learn, not unless there is specific, targeted neurodevelopmental input, and specific targeted metabolic input…

]]> By: Cheri Foreman http://einstein-syndrome.com/einstein-syndrome/#comment-809 Cheri Foreman Sat, 23 May 2009 14:27:01 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-809 Miriam, thank you for stopping by my blog so I could then find your blog.....I could spend all weekend here, what an amazing and resourceful site you have put together! Thank you, thank you!!!! You have posted about so many things that are dear to me, or that i have been meaning to research.....and it is all here!!!!!! I will be back again, and again, and again...... :) Cheri (Long Beach, CA) Miriam, thank you for stopping by my blog so I could then find your blog…..I could spend all weekend here, what an amazing and resourceful site you have put together! Thank you, thank you!!!! You have posted about so many things that are dear to me, or that i have been meaning to research…..and it is all here!!!!!! I will be back again, and again, and again…… :)

Cheri (Long Beach, CA)

]]> By: Casey http://einstein-syndrome.com/einstein-syndrome/#comment-763 Casey Thu, 14 May 2009 01:35:47 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-763 As a new parent of a child with Down Syndrome I look forward to the challenges ahead. I feel sorry for those like Lisa. They seem to have a negative attitude about their child. My wife and I found our at 11 weeks that our child would have a genetic disorder. Even though the medical society proposed abortion to deal with our "unfortunate" situation we embrace our new life with open arms. Parents with positive attitudes will raise children with positive attitudes. And most of all they will have a chance to survive. A child with Down Syndrome is a blessing. Nothing more nothing said, a true blessing. I wish you the best Lisa. As a new parent of a child with Down Syndrome I look forward to the challenges ahead. I feel sorry for those like Lisa. They seem to have a negative attitude about their child. My wife and I found our at 11 weeks that our child would have a genetic disorder. Even though the medical society proposed abortion to deal with our “unfortunate” situation we embrace our new life with open arms. Parents with positive attitudes will raise children with positive attitudes. And most of all they will have a chance to survive. A child with Down Syndrome is a blessing. Nothing more nothing said, a true blessing. I wish you the best Lisa.

]]> By: Maggie http://einstein-syndrome.com/einstein-syndrome/#comment-752 Maggie Tue, 12 May 2009 20:24:58 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-752 Brilliantly said! I have 2 children with Down syndrome and we are using your Einstein method of schooling/teaching. Our 4-year-old identical twin sons can do every thing any other child can do... often on/or nearly on time as well. Our expectations are that they will exceed all expectations. And, so far, they have... not only for us, their parents and friends but for absolutely every one who meets them. Yes, I spend a bit more time working with them but no more so than I've spent on math with my 7-year-old daughter who has recently, suddenly mastered that subject! Thanks for putting it so eloquently! Brilliantly said! I have 2 children with Down syndrome and we are using your Einstein method of schooling/teaching. Our 4-year-old identical twin sons can do every thing any other child can do… often on/or nearly on time as well. Our expectations are that they will exceed all expectations. And, so far, they have… not only for us, their parents and friends but for absolutely every one who meets them. Yes, I spend a bit more time working with them but no more so than I’ve spent on math with my 7-year-old daughter who has recently, suddenly mastered that subject!

Thanks for putting it so eloquently!

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