Comments for Einstein Syndrome: Down Syndrome with a Positive Attitude http://einstein-syndrome.com Down Syndrome with a Positive Attitude Mon, 23 Jan 2012 20:35:47 +0000 hourly 1 http://wordpress.com/ Comment on Constipation in Down syndrome by Jacinta http://einstein-syndrome.com/health_medical/constipation/#comment-4627 Mon, 23 Jan 2012 20:35:47 +0000 http://einsteinsyndrome.wordpress.com/?page_id=121#comment-4627 My daughter started having constipation problems at 18 months, I went online and researched for a possible cure/relief.
One parent suggested a change in diet – no diary products, no white rice and no bananas. They also advised me to put my daughter on a high fibre diet. I had nothing to lose, I did not want to use any drugs or suppositories etc….. I wanted to go as natural as possible.
After a few weeks, it worked wonders for my daughter …. no more screaming to use the bathroom. She is now four years old and I still monitor her diet and she is as regular as my other kids. Thank you to the parent who offered this alternative remedy. It worked for my daughter and me!!!!

]]> Comment on 10. Focus on Gut Health by eternally grateful! http://einstein-syndrome.com/2009/05/13/10-focus-on-gut-health/#comment-4483 Sat, 14 Jan 2012 03:48:45 +0000 http://einstein-syndrome.com/?p=505#comment-4483 *in tears* Thank you for the invaluable information! I have an11-month old with DS and because of the constipation (once a week BM’s), 90% of his diet is still breastmilk. I will go to the health food store right away to purchase the products noted. Thank you again!

]]> Comment on Should I Keep This Baby? by Noah's Dad http://einstein-syndrome.com/stars/keep_baby/#comment-4034 Wed, 21 Dec 2011 04:40:44 +0000 http://einsteinsyndrome.wordpress.com/?page_id=35#comment-4034 Our son was born with Down syndrome almost a year ago today and I can honestly say that our life has never been better. He is the best ‘thing’ that’s ever happened to our family. Our life is certainly better as a result of him being in it.

We decided to create an online narrative to show the world that Down syndrome is ok. We do a daily video about his life and invite anyone checking out this site to take a look. Here are a few posts that may be helpful to those wanting to find out more information about Down syndrome:

http://noahsdad.com/down-syndrome

http://noahsdad.com/new-parent-guide

http://noahsdad.com/down-syndrome-blog

]]> Comment on Iron Depletion Warnings by Qadoshyah http://einstein-syndrome.com/2010/06/28/iron-depletion-warnings/#comment-3657 Sun, 27 Nov 2011 20:49:48 +0000 http://einstein-syndrome.com/?p=775#comment-3657 You’ve won a blog award :) : http://gotdownsyndrome.blogspot.com/2011/11/triple-cute-blog-award.html

]]> Comment on Einstein Syndrome by James Greenwood http://einstein-syndrome.com/einstein-syndrome/#comment-3298 Mon, 10 Oct 2011 09:21:46 +0000 http://einsteinsyndrome.wordpress.com/?page_id=20#comment-3298 My unborn daughter (my first child too!) has been diagnosed with DS. After the initial ‘shock’ I viewed this very negatively and had many thoughts running through my head – will she be ‘deformed’, will she be ‘retarded’, will she live past 40, will she spend her life tarnished by social stigma? I was lucky in that I received some extremely positive advice from Dr Pierce at Leeds General Infirmary. She explained that whatever this little kid needed that help would be there and that the type of adult she would grow to become was mostly down to us as parents. Of course it will be challenging, but it’s certainly not impossible that my daughter will lead a happy, independent and fulfilling life. I won’t be forcing her to be something that she isn’t, but I’ll be guiding her to achieve each of her goals, realise her ambitions and give her the opportunity to be a responsible member of society. That is what any parent should do. I refuse to ‘give up’, and from the scans I’ve seen…so does she. Little Starling. x

[What an awesome doctor, and absolutely right! Take a look at this video that I just saw today: http://www.youtube.com/watch?v=rnT-tKp7JMg So much does depend on the parents and the choices you make. You have already made the first correct choice, Embrace Your Calling. - Miriam ]

]]> Comment on 1. Embrace your Calling by Roger Carrothers http://einstein-syndrome.com/2010/03/03/embrace-your-calling/#comment-3100 Thu, 04 Aug 2011 23:59:24 +0000 http://einstein-syndrome.com/?p=747#comment-3100 This was a real blessing and encouragement to read. Me and my wife’s 9th child, Judeae, was diagnosed w/ down syndrome. We feel / believe just like your posting here. Thank you for your encouragement. God bless!

]]> Comment on God, Do You Care? by Rose Cucksey http://einstein-syndrome.com/inspiration/god_cares/#comment-3016 Thu, 14 Jul 2011 16:23:58 +0000 http://einsteinsyndrome.wordpress.com/?page_id=80#comment-3016 My daughter was born 24 years ago…to me she is not “disabled”…to me she is wonderful…she likes to read, and sing and draw…her favorite color is yellow and although her hair is brown (like mine use to be) she has it colored to be like Reba. She loves icecream and her dog Lucky. She loves her nephews (when they do not cry) and oh yeah she has Down Syndrome.

A government official told me I had to make her move out of the family home at 18 years old and while that was not our plan he devised a plan to make it happen.

In recent days I have discovered that the law that he used to take her creates bias and limits services to her as a person. I have found laws and other government documents that offer a more inclusive life for her…I have not stopped looking…and so far I find no other law that says because she ‘may’ be developmentally delayed (a paper by Chris Borthwick speaks to this) she is limited to the activities of life and and the services offered by our government.

Also as a Christian I have the faith to understand that John 9 tells the story of a man freed from the restrictions of the old Testament of ‘you reap what you sow’ to freedom by Gods grace in the new Testament of healing through the acceptance of His presence. When I was told that my daughter had Downs Syndrome I never faultered…I took is as another facet of who my child would be… a girl, health except for needing heart surgery, brown hair, hazel eyes, creative, and with Downs Syndrome.

I raised her not as a ‘cripple’ or ‘disabled’ but as a girl, healthy except for the heart surgery, brown hair she eventually colored, hazel eyes that needs glasses and wonderfully talented. When she started school she was taught she was different…when she started school they told her she could not do certain things – so she did not do them at school but continued them at home.

No to me she is my daughter and I treat her as I would any 24 year old.

]]> Comment on Sound Therapy by Andrea Nelson http://einstein-syndrome.com/development/sound_therapy_neurodevelopmental/#comment-3002 Mon, 11 Jul 2011 17:46:10 +0000 http://einsteinsyndrome.wordpress.com/?page_id=107#comment-3002 Where do you go to purchase the Samonas Sound therapy? I have a baby girl who is 5 months old with ds.
Thanks,
Andrea Nelson

[Andrea, here are some places with more info on Samonas therapy.

http://www.riverbendds.org/index.htm?page=samonas.html

http://www.samonas.com/

http://www.icando.org/articles/learning/20-samonas-sound-therapy

Miriam]

]]> Comment on God, Do You Care? by Barbara http://einstein-syndrome.com/inspiration/god_cares/#comment-3001 Mon, 11 Jul 2011 17:45:49 +0000 http://einsteinsyndrome.wordpress.com/?page_id=80#comment-3001 Dear Lucy,
I am so sorry for your loss and the pain you are feeling. I appreciate your honesty. I do not understand this either, especially the suffering. I don’t believe it was God’s plan or will for her. I only know that the bottom line is that we have to trust the Lord who makes restitution and heals all things. Thankfully your little girl is feeling wonderful now and enjoying an amazing life and she wants you to see her (with no DS and no complications!) and be with her one day, to be just as happy as she is. I pray that you will have the grace to forgive God, knowing that he did not cause her pain but gave your baby a hope and a future. Our life on earth is a drop in the bucket compared to all eternity. I pray that his peace will flood the atmosphere around you right now and take ALL of the pain and hurt away. You are deeply loved and I beleive great things are ahead for you (goodness and mercy will track you down all of your days). You have a destiny to fulfill and we need your part!
Barbara

]]> Comment on 1. Embrace your Calling by CBruce http://einstein-syndrome.com/2010/03/03/embrace-your-calling/#comment-2988 Thu, 07 Jul 2011 00:00:13 +0000 http://einstein-syndrome.com/?p=747#comment-2988 My son’s condition has lead me to purue a career in physical therapy. I do believe it is my calling! Good write up thanks!

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