Comments on: 8. Don’t Wait for “Their Own Time.” http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/ Down Syndrome with a Positive Attitude Mon, 23 Jan 2012 20:35:47 +0000 hourly 1 http://wordpress.com/ By: MAgdalena Vázquez http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/#comment-1541 Tue, 09 Mar 2010 15:06:54 +0000 http://einstein-syndrome.com/?p=532#comment-1541 Miriam,
Thank you for writing these articles, it is a great resource for mothers like me. Ismael is working hard on the pattering and I have done the massage for propioceptions since he was 40 days old. In Mexico we do a little different technique I think, from what I read. We make a little push towards the joint. 5 pushes with very little babies and up to 20 with older. Each joint of the body satrting with toes and going upwards. I will also start with the pressure. Thnaks again for being there.

]]> By: Cole http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/#comment-1197 Sat, 21 Nov 2009 12:36:51 +0000 http://einstein-syndrome.com/?p=532#comment-1197 Miriam- thank you so very much- We are here right now and trying to work on these things. I found your blog months ago and need to go back and reread your 15 things. They made sense at the time- but I’m guessing they will make even more sense now. My daughter is 9 mos old and we are working on the SRJ oral-motor protocol- sadly I didn’t find someone who did it until she was btw 5-6 mos old- this was a huge setback for us- if I could have had our OT as late as even 3 mos old she would be nursing now- I have no doubt. Your comment that the 15 things are things you would do if you had another baby with Ds really rung true with me. I keep telling people that I have half a mind to go adopt a one month old with Ds just so I can teach her to nurse sense I now know how- Because I have that one regret already- that one area of not knowing what I don’t know and the importance of knowing it- I need to go back and read your 15 things again- so I don’t repeat the same pattern in those other areas. I know we’ll still benefit with the oral-motor therapy we’ve been doing since 5.5 mos- I just wish we could have had it even earlier. It is such a fine mental line between the mental acceptance so that you stay positive about “in their own time”- so that you understand fully what your child is capable of- but you are right- you still need to treat it as an area to focus on- these basic needs. Thank you for all you share- your blog is such a gift.

]]> By: Qadoshyah http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/#comment-833 Wed, 27 May 2009 19:09:24 +0000 http://einstein-syndrome.com/?p=532#comment-833 Excellent post, Miriam!

The oral motor stuff is one of the biggest things I regret not knowing about when Osiyyah was a baby. I think, he could very well be talking a lot more right now if we would’ve known about OMT when he was little! But, at least we know about it at the age we do.

Qadoshyah

]]> By: farrellsx4 http://einstein-syndrome.com/2009/05/25/8-dont-wait-for-their-own-time/#comment-832 Wed, 27 May 2009 10:41:31 +0000 http://einstein-syndrome.com/?p=532#comment-832 Miriam, thank you so much for stopping by my blog. How in the world have I not found your blog either-???! Wow, I have scanned some info already and LOVE all that you have on here.

I look forward to reading even more and learning more about you and your family.

Sari

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