Comments on: Long term negative outcomes of vitamin therapy http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/ Down Syndrome with a Positive Attitude Sun, 29 Aug 2010 12:29:57 +0000 hourly 1 http://wordpress.com/ By: 3. Acknowledge and Treat Gene Over-expression « Einstein Syndrome: Down Syndrome with a Positive Attitude http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-1373 3. Acknowledge and Treat Gene Over-expression « Einstein Syndrome: Down Syndrome with a Positive Attitude Wed, 03 Feb 2010 21:18:27 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-1373 By: Lisa http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-1277 Lisa Sat, 09 Jan 2010 01:50:06 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-1277 Hi Miriam, my son with DS is 4 months (3 corrected) old. I have recently come across TNI through the Changing Minds Foundation and your site. At the moment I am still in the process of researching TNI further but am wondering what would be the minimum age for administering Nutrivene and Ginkgo Biloba? Should I start now with the baby as young as he is?? I can't seem to find any articles which states the minimum age or recommended starting time. Are there any known possible side effects from these on babies? And I'm also getting confused as to which Nutrivene I should be looking at! Thank you for your "contribution" to my research through this site, and I hope you could help me further by answering some/all of my questions! Lisa. [Lisa, many, many parents have started Nutrivene-D at birth, and some even prenatally. It is dosed by weight, so your son would get only the amount his little body needs. The damage from the extra chromosome is happening now, so your interventions should begin as soon as possible. You should call International Nutrition (www.nutrivene.com and find a phone number there) and talk to them about the recommended protocol for DS. Nutrivene-D Daily Supplement is the main product you want, but there is a complete recommended protocol. -Miriam] Hi Miriam,

my son with DS is 4 months (3 corrected) old. I have recently come across TNI through the Changing Minds Foundation and your site. At the moment I am still in the process of researching TNI further but am wondering what would be the minimum age for administering Nutrivene and Ginkgo Biloba? Should I start now with the baby as young as he is?? I can’t seem to find any articles which states the minimum age or recommended starting time. Are there any known possible side effects from these on babies? And I’m also getting confused as to which Nutrivene I should be looking at!

Thank you for your “contribution” to my research through this site, and I hope you could help me further by answering some/all of my questions!

Lisa.

[Lisa, many, many parents have started Nutrivene-D at birth, and some even prenatally. It is dosed by weight, so your son would get only the amount his little body needs. The damage from the extra chromosome is happening now, so your interventions should begin as soon as possible. You should call International Nutrition (www.nutrivene.com and find a phone number there) and talk to them about the recommended protocol for DS. Nutrivene-D Daily Supplement is the main product you want, but there is a complete recommended protocol. -Miriam]

]]> By: Miriam Kauk http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-926 Miriam Kauk Tue, 23 Jun 2009 18:08:40 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-926 The short answer is no, it is not too late. Not at all. The short answer is no, it is not too late. Not at all.

]]> By: justme http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-924 justme Tue, 23 Jun 2009 00:54:03 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-924 My daugther is 10, is it to late to try the vitamins? My daugther is 10, is it to late to try the vitamins?

]]> By: Miriam http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-655 Miriam Wed, 22 Apr 2009 22:05:06 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-655 Thank you for your kind words about this site. You may find that after your son is on Nutrivene-D for awhile that he needs a lower dose of Levothyroxine. Nutrivene-D supplies nutrients which support thyroid function. See <a href="http://einstein-syndrome.com/health_medical/thyroid_case_histories/" rel="nofollow">Thyroid Case Histories</a> for some stories of how thyroid hormone and vitamins work together. I recommend that you begin with the Nutrivene-D complete program. If you follow their directions, you will begin by slowly phasing in the various components. After you are on the full program you can begin to individualize it for your son, based on your testing or his reactions. And, yes, you may well find that the Tryptophan in the night-time formula satisfies the same need as the melatonin you are giving. Plus, the night-time formula promotes growth. Thank you for your kind words about this site.

You may find that after your son is on Nutrivene-D for awhile that he needs a lower dose of Levothyroxine. Nutrivene-D supplies nutrients which support thyroid function. See Thyroid Case Histories for some stories of how thyroid hormone and vitamins work together.

I recommend that you begin with the Nutrivene-D complete program. If you follow their directions, you will begin by slowly phasing in the various components. After you are on the full program you can begin to individualize it for your son, based on your testing or his reactions.

And, yes, you may well find that the Tryptophan in the night-time formula satisfies the same need as the melatonin you are giving. Plus, the night-time formula promotes growth.

]]> By: Jennifer http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-651 Jennifer Wed, 22 Apr 2009 19:09:18 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-651 First of all - thank you for such a fantastic website - I have been spending my afternoon looking through all the great info you've got here! We just started our little man (5.5 yrs old) on thyroid meds - so I'm going to ask his Endo to make sure we can start him on Nutrivene-D along with his Levothyroxine (and if I can put him back on Gingko as well - we used to do this but stopped for no good reason at all). Anyway, my question to you is do you do the Nutrivene "Program" with your daughter or just Nutrivene? Along with that - we use melatonin religiously with our son - it really helps get him to sleep at night but we might not need that with the Tryptophan in their night formula (or will we?) First of all – thank you for such a fantastic website – I have been spending my afternoon looking through all the great info you’ve got here!

We just started our little man (5.5 yrs old) on thyroid meds – so I’m going to ask his Endo to make sure we can start him on Nutrivene-D along with his Levothyroxine (and if I can put him back on Gingko as well – we used to do this but stopped for no good reason at all).

Anyway, my question to you is do you do the Nutrivene “Program” with your daughter or just Nutrivene?

Along with that – we use melatonin religiously with our son – it really helps get him to sleep at night but we might not need that with the Tryptophan in their night formula (or will we?)

]]> By: Miriam http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-566 Miriam Fri, 20 Mar 2009 15:00:31 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-566 Carolyn, I'd suggest joining either the ES email list http://einstein-syndrome.com/join/ or DSTNI at yahoogroups. Both have archives full of ideas for feeding the vitamins to your child. Here are a few off the top of my head. Keep it cold. Cold has less taste. Squirt it to the back of the mouth next to the cheek, to bypass most of the tongue. Keep using the tube for the vitamins while your baby learns to eat good tasting foods by mouth. Make the vits the last thing to go by mouth. There are many more ideas that have been suggested on both those lists. Carolyn,
I’d suggest joining either the ES email list http://einstein-syndrome.com/join/ or DSTNI at yahoogroups. Both have archives full of ideas for feeding the vitamins to your child. Here are a few off the top of my head. Keep it cold. Cold has less taste. Squirt it to the back of the mouth next to the cheek, to bypass most of the tongue. Keep using the tube for the vitamins while your baby learns to eat good tasting foods by mouth. Make the vits the last thing to go by mouth. There are many more ideas that have been suggested on both those lists.

]]> By: Carolyn http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-564 Carolyn Fri, 20 Mar 2009 07:24:17 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-564 I have a question for you..... How do you get Nutrivene into a baby who refuses to take it? At the moment my 6 month old (4 month corrected) daughter is still on an NG tube, so we are just putting it down that, but her dr wants us to try and get her off the tube over the next month. This raises the issue of how will we get her to take her medicine? We have been trying to get her to take it by giving it to her in a syringe, a few mls at a time, but she succeedes in spitting it up with such force, that our furniture now has specks of orange everywhere!! She is on the powder, mixed with Piracetam, EPO's and Probiotic. We mix it all with a little water. We used to mix it with EBM, but it would clog in the tube. Any advice????? Thanks Carolyn I have a question for you…..

How do you get Nutrivene into a baby who refuses to take it?

At the moment my 6 month old (4 month corrected) daughter is still on an NG tube, so we are just putting it down that, but her dr wants us to try and get her off the tube over the next month. This raises the issue of how will we get her to take her medicine?

We have been trying to get her to take it by giving it to her in a syringe, a few mls at a time, but she succeedes in spitting it up with such force, that our furniture now has specks of orange everywhere!!

She is on the powder, mixed with Piracetam, EPO’s and Probiotic. We mix it all with a little water. We used to mix it with EBM, but it would clog in the tube.

Any advice?????

Thanks
Carolyn

]]> By: Just a waste of cash! part 2 « Einstein Syndrome: Down Syndrome with a Positive Attitude http://einstein-syndrome.com/2008/03/02/long-term-negative-outcomes-of-vitamin-therapy/#comment-80 Just a waste of cash! part 2 « Einstein Syndrome: Down Syndrome with a Positive Attitude Sun, 09 Mar 2008 12:55:10 +0000 http://einsteinsyndrome.wordpress.com/?p=103#comment-80 [...] UPDATE: Waste of Cash! part 3 is here. Part 4 on long term negative outcomes is here, [...] [...] UPDATE: Waste of Cash! part 3 is here. Part 4 on long term negative outcomes is here, [...]

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